Archive for January, 2010

Know a little more about infusion and radiation

Sunday, January 24th, 2010

Saw the doctor that will be overseeing or whatever the stem cell infusion, so have more info about it and the radiation treatment.  Ok, so I’ll have three total cycles of chemo which are three days in a row three weeks apart.  After the last chemo they’ll collect stem cells for 1 to 3 days probably in the third week after.  Shortly there after (3 or (more…)

and I have no hair

Sunday, January 24th, 2010

Meant to update sooner but had a friend in town so was spending my time with him.  Anyway, the day he was driving up, Tuesday, I rubbed my buzz cut head/hair and it almost hurt a little bit and my scalp felt slightly irritated by it, “that’s not a good sign” I thought, well, took a shower and I checked my towel after drying my hair like I did (more…)

update on my hip

Monday, January 18th, 2010

Had an appointment with the bone doctor surgeon guy this morning.  Talked a little, then got an X-Ray of both hips, then a few of each hip by it’s self with my leg in different positions.  He said the bone lesion couldn’t be seen in the x-ray, so it wasn’t bad enough to need surgery for a rod or plate and can be treated using radiation.  So ya, definitely (more…)

quick update

Wednesday, January 13th, 2010

Last day or two or three seems the effects of he chemo are pretty much gone it but still have hodgkin’s making me feel varying degrees of bad.  Most days are only a little bad but some days suck pretty good.  Was feeling pretty shitty a day or two ago and it’s kinda frustrating.  There’s nothing I can do about it.  It feels sorta like being (more…)

still hanging in

Sunday, January 10th, 2010

Thursday was probably the worst, Friday was about the same if slightly better, Saturday was a little better and today is slightly better than yesterday but still not normal.  The anti-nausea drugs seem to kinda not do anything, don’t know if I have to take more of them (pain medication in general don’t work well on me, so might be a similar deal) or what, but (more…)

quick post

Thursday, January 7th, 2010

I don’t feel like writing much so I’ll get to it, yesterday and today sucked, little worse than the normal from the original chemo but it’s not the worst I’ve felt from chemo so hoping that continues, still have a few more day of the shittiest probably.  The worst kicked in the second day after like, it did last time, yesterday and today are the two (more…)

found out a little more about the stem cell treatment

Tuesday, January 5th, 2010

The reason for the stem cell infusion is because they give you a mega dose of chemo (and I think radiation too) that kinda zeros your system out and has to have the stem cell infusion to help you up after.  Someone talked to me to do some kind of mental exam to make sure I was ready for how tough it could be, like if I was (more…)

today’s been about the same

Tuesday, January 5th, 2010

parts were slightly worse than yesterday, parts were slightly better, so the same overall.  Hoping tomorrow doesn’t totally blow, but just have to wait and see.

I have a hickup-burp-suck in air thing that happens sometimes, happens at random sometimes but it happens kinda every time I eat past some threshold of starchy food like rice or potatoes.  I think this chemo regimen is (more…)

How it’s going so far

Monday, January 4th, 2010

Had chemo today as you probably know, the original chemo regiment was two (maybe three but I think two) drugs pushed from a syringe and one bag that took an hour (think it’s the medicine pushed into a bunch of saline or whatever), this time is all bags.  That’s why it takes so long, got there 8:30am, got home at 4pm.  So far, it’s (more…)

Fuck you bed

Sunday, January 3rd, 2010

I have trouble going to bed in general anyway, but when I’ve got something like this looming, it’s even harder to get to bed.  Think it’s subliminally like, if I don’t go to bed, that somehow means tomorrow won’t come.  Overall though, I’m not doing too bad mentally.  I’m a bit anxious and freaked out about how I’ll feel tomorrow.  It’s going to blow but how much is not known.  The first chemo I was having was ‘well tolerated’ and I ‘might have hair loss’, this one they didn’t (more…)