Archive for the ‘Hodgkin’s lymphoma’ Category

opposing thoughts

Thursday, July 15th, 2010

I’ve been wanting to type this up all day but have been putting it off.  I think I’ve just been distracting myself so I don’t have to think about it.  Now that I’ve started I’ve been doing a mixture of staring at the text box not knowing how to start and messing with what music I want to listen too…

I was ask by a friend last weekend, “What do you want?” referring to my future, or was it, (more…)

Pet scan results

Wednesday, July 7th, 2010

Got the PET scan results earlier today, about to go to bed and realized I been busy with appointments and things and hadn’t posted them.  So anyway, the Pet scan came back as having no lymph node lumps like the CT scan did!  Only thing is there is something in my chest but the doctor said it was probably just from the catheter and/or it’s removal and they’ll recheck it later.  Definitely relieved and excited and really hope it stays away this time!


Friday, July 2nd, 2010

I had a PET scan early (for me) this morning.  I don’t have the results yet, so I’ll have to wait until Tuesday… Basically go see the “no news is killing me” post for how I feel about not knowing.  I had an appointment with Dr. Kaminer, pretty much a non-event.  I’m doing better but it will be a month or two before I’m back more to normal and (more…)

definitely a good start

Wednesday, June 30th, 2010

Well, the CT scan came back pretty good.  Think she said they didn’t find any lumps (when she called just now I was kinda awe struck or dumb founded or something and didn’t do much talking or clarifying but she definitely didn’t say that they did find lumps, so that basically means there wasn’t any).  She used some medical term or (more…)

no news is killing me

Wednesday, June 30th, 2010

I tried calling Marcia, Dr. Kaminer’s nurse but she didn’t pick up the page.  I then left a page with my name and number for Dr. Kaminer… I’m basically vibrating with anxiousness and nervousness…  I’ve never wanted to know something more in my life… and yet at the same time, don’t want to know…  It’s an odd mix of emotions, feel like (more…)

some pics

Monday, June 28th, 2010

some images taken during the high dose chemo that I’ve been meaning to post but haven’t previously. (more…)

little better

Monday, June 28th, 2010

Last Thursday night I didn’t sleep at all.  Friday night I slept some but not great, way better than not at all though.  Saturday I looked at the paper they gave me with the zoloft (because it’s the only thing that changed) and trouble sleeping is a listed side effect.  I stopped taking it and started to sleep a little better.  I seem to be back to sleeping regular bad instead of extra bad.

I have  a CT scan tomorrow to check if the lumps are gone… I can’t help but be   (more…)

about the same

Wednesday, June 23rd, 2010

I met with the social worker and got a prescription for Zoloft from Dr. Kaminer. Only been two days so don’t feel any different yet. We’ll see.

Getting out and doing things helps but it’s hard to get myself to do stuff. I just don’t feel like doing anything. Also, there’s only so many times you can go to the grocery store or whatever. Right now I can’t guarantee I”ll be at (more…)

It’s been to long since I posted

Saturday, June 19th, 2010

Sorry guys, it’s been to long.  I keep meaning to post but then not making time for it or not feeling like it.

Food has tasted pretty much like I’d expect it to for a week or two now.  Haven’t retried ketchup though (I did say that ot tasted SUPER sweet and really vegtablely to me the last time I tried it didn’t I?).  I have a couple problems with food right now. (more…)

Figured out something about food

Tuesday, May 18th, 2010

I ate the same thing today as yesterday for dinner. My dad bought some very thinly sliced steak and made some rice in his rice cooker.  Yesterday he used butter in the pan. I found that if I padded off the steak with anapkin it was less bad.  Seemed odd but (more…)