MrbLOB9000

got a call this morning about the PET scan results. Dr. Dragon said there was ‘abnormalities’ in my lower abdomen, hips, pelvis, something like that (he said one, not a list like that) don’t know what the actual word was he used but ya, down there, where there previously had never shown anything. We don’t know what it is yet, if it’s hodgkin’s or something new. Have an appointment on Thursday with him to see if he can feel anything. I ask how do we find out and he said do a biopsy.

Probably know a little more on Thursday.

Scan went fine, I almost locked myself out of the house before leaving to get the scan, that would have sucked, but as I was shutting the door, as I was pulling it all the way closed I realized I didn’t have them and went back in.  If I realized it a second later I’d have been screwed.  Other than that, nothing.  Oh and as I was leaving I realized and said to myself, “All I’ve eaten today was radioactive glucose.” and then realized that sound like a line from a comedy SciFi show or maybe bad regular SciFi.

Should find out the results tomorrow (Tuesday), Wednesday at the latest probably.

Just typed this to a friend of mine in an e-mail and it has how I’m feeling and more about what’s been going on, I was thinking to post here about basically the same thing anyway, so figured I’d modify it a little and post it here too.

Little background I guess, in the previous e-mail I said (more…)

Called today to schedule and I still wasn’t set in the system with an order for a PET scan, so I called to talk to Dr. Dragon again and the operator this time wouldn’t let me talk to him, sent me to his nurse (the one that hadn’t set it in the system yet), left a message.  Sent an e-mail to Dr. Dragon as well.  Called back an hour or so later and the same operator wanted to transfer me to the same nurse’s phone (to probably get voice mail again) so I explained what was up and she took my name and info and whatnot and was going to talk to her specifically about it.  Waited like a half hour and then called to schedule again and the order was there.  So kinda, short story long but I have it scheduled for monday 2:30pm.  It was that or 7:30am, so fuck that. heh or go with tuesday or later in the week, screw that as well.

So should know more Tuesday or Wednesday.

Called Dr. Dragon and he was surprised his nurse hadn’t called me and he said he’d go talk to her and she called a half hour later. It was too late to get it scheduled today because the scheduling office closes at 4:30, but should be able to get it scheduled tomorrow (for who knows when but should be able to get one pretty soon).

I kinda don’t know what to hope for actually.  Like what to hope the deal is with me I mean.  Seems far fetched that it’d just be my immune system trying to catch up at this point, it’s been 5 months since my last chemo and I’ve felt progressively slightly worse.  Seems to be logical that it’d be the hodgkin’s fucking me again but I don’t know, if it comes back and isn’t hodgkin’s, then wtf could it be?

Still haven’t gotten a scan or appointment scheduled, they didn’t call me today, will call tomorrow and see what the deal is.

Talked to Dr. Dragon today, he said something like, “I’m somewhat concerned with some of your symptoms.” and tomorrow he’s going to have his nurse setup a scan for this week or the next (think he said probably PET scan, but think he was still deciding what he wanted to do).

Not feeling terrible is all I really know I guess.  Just typed an e-mail to Dr. Dragon that has most of the info, so I guess I’ll just paste that here… (more…)

Had an appointment with Dr. Dragon about a month and a half ago, went fine.  Didn’t have scans, he just felt me for lumps (didn’t find any) and ask how I was doing.  At the time pretty good that majority of the days.  Week or two ago I had a port flush (they just pump some saline through and then some heprin so it doesn’t clot inside the tube).  That went fine.  As for how I’m doing now and been doing recently, read the post after this.

ok, so what that actually means is that since I still have my port in, once every month and a half I have to go in and have them draw a slight amount of blood and put some more heprin (an anticoagulant) so the blood in the tube that is attached to my port doesn’t coagulate, which would be bad for obvious reasons.

I had a slight amount of trouble sleeping last night, even though it was just a port draw and nothing more, I still felt like, I don’t know, that I didn’t want them to find something.  I’d much prefer not having cancer again, needless to say. 🙂  The actual port draw went quickly.  Sitting in the waiting room was a bit surreal.  It was odd, it felt like slightly like I had just been there for chemo very recently but also like I hadn’t been there in a long time.  Both at the same time, surreal and odd feeling.  Also, it was a different experience because it’s the first time I’ve been there and not have to prepare myself for something, whether it’s bad news, chemo, whatever.  I was more the person looking in, the observer, vs. the one on the inside or whatever.  I don’t know.  It felt different to be there this time.  Different in a good way.