Just typed this to a friend of mine in an e-mail and it has how I’m feeling and more about what’s been going on, I was thinking to post here about basically the same thing anyway, so figured I’d modify it a little and post it here too.
Little background I guess, in the previous e-mail I said (more…)
Called today to schedule and I still wasn’t set in the system with an order for a PET scan, so I called to talk to Dr. Dragon again and the operator this time wouldn’t let me talk to him, sent me to his nurse (the one that hadn’t set it in the system yet), left a message. Sent an e-mail to Dr. Dragon as well. Called back an hour or so later and the same operator wanted to transfer me to the same nurse’s phone (to probably get voice mail again) so I explained what was up and she took my name and info and whatnot and was going to talk to her specifically about it. Waited like a half hour and then called to schedule again and the order was there. So kinda, short story long but I have it scheduled for monday 2:30pm. It was that or 7:30am, so fuck that. heh or go with tuesday or later in the week, screw that as well.
So should know more Tuesday or Wednesday.
Called Dr. Dragon and he was surprised his nurse hadn’t called me and he said he’d go talk to her and she called a half hour later. It was too late to get it scheduled today because the scheduling office closes at 4:30, but should be able to get it scheduled tomorrow (for who knows when but should be able to get one pretty soon).
I kinda don’t know what to hope for actually. Like what to hope the deal is with me I mean. Seems far fetched that it’d just be my immune system trying to catch up at this point, it’s been 5 months since my last chemo and I’ve felt progressively slightly worse. Seems to be logical that it’d be the hodgkin’s fucking me again but I don’t know, if it comes back and isn’t hodgkin’s, then wtf could it be?
Still haven’t gotten a scan or appointment scheduled, they didn’t call me today, will call tomorrow and see what the deal is.