MrbLOB9000

Conversation between me and a buddy about what’s been going on:

Buddy: heyy
mrblob9000: Hey
Buddy: how’s it goin
mrblob9000: Totaly blows but i’m getting by
Read the rest of this entry »

Going to be kinda scatter brained post, just going to give a little synopsys and then paste some texts from today how i’m doing. Read the rest of this entry »

Second (and last) week of ‘full body’ radiation went ok, throat got worse and sucked but not super terrible, just had to watch what I ate and remember to overly chew my food and it was ok.  I mean it blew but I could tolerate it.  Third week went ok but throat was still bad.  Needed hydration a few days ’cause I wasn’t able to drink enough liquid.  That was just targeted radiation on where I currently had disease.  Third week was Read the rest of this entry »

First week of radiation is over.  Weekends are off, so next day for radiation is Monday.  I felt weird Monday before radiation, like my stomach wasn’t right.  It had me a little worried but I ignored the worry and just monitored it basically, ’cause what could I do?  Like I said before radiation is twice a day.  Last week it was at 8am and then 2pm.  This coming up week it’s at 8am and 2:30pm.  Monday and maybe Read the rest of this entry »

Had the radiation simulation yesterday, which sucked.  Walked into the room and it’s all white with slightly dim lighting There’s this big ass machine with a platform/table under it.  It has a big thing jutting out at the top above the table and two smaller things jutting out to the left and right of the table (I think both sides).  They had me lay on a Read the rest of this entry »

Been doing alright, feeling a little better this week than last week (last week felt slightly crappy but not to bad) but still not quite up to snuff. Mainly my new catheter has been getting me down. It kinda gets in the way and hurts a little but that’s not that big of a deal. The main problem is there’s really no good way to cover it when showering, so it’s frustrating. Using saran wrap or a ziplock bag and some paper medical tape kinda works but not Read the rest of this entry »

Kept meaning to post but never got around to it.  Well, the stem cell harvest is over, last one was yesterday.  Went in Tuesday, Wednesday and Thursday for it.  The goal is to get a total of 5 million per some-thing-or-other, Tuesday they got 1.7, Wednesday they got 2.4, so they had 4.1 for the first two days.  I don’t know how much they got on Thursday but definitely more than 5 total.  The machine that does it is Read the rest of this entry »

I went in this morning and they took my blood and shortly after got the white blood count back and it was good, like twice normal or something (so high because of the neupogen shots I give myself the last week+), and was able to get the catheter put in today.  It takes longer to get the platelets and/or stemcell results back, so didn’t have that in advance of putting the cath in.  It turned out they weren’t high enough. They were 15 and should have Read the rest of this entry »

Should be in bed but wanted to do a quick update first.  I have to be up tomorrow at like 6:15am to get to the hospital to get surgery to put the new catheter put in my vain to do the blood stem cell harvest.  The fun’s not over after that though, it’ll be used that day (if I pass whatever metric in my blood test).  I’ll be hooked up to a machine that Read the rest of this entry »

I keep forgetting to say Dr. Dragon called me at 9 pm the night I had the PET scan to say it looked much better too and like the CT scan it too didn’t show anything in my left arm pit either.  It still showed that they were there but no new ones and they were less bright than they were.